She is out! We just met with the surgeon and everything went well. In about 3-5 days we can start with feeds from a feeding tube through her nose that goes right into the intestines so we don't have to deal with reflux while she has the vent in. They are going to take a conservative method of stepping down anything so we don't take any large steps backwards. It will make our icu stay a little longer but better safe than sorry! I just can't believe that lungs that are only at 17% can do so well. It looks like we are out of the woods of needing ecmo. She needed a "c" patch. Meaning more than 50% of her diaphragm is gone. The surgeon says don't research that. That she is acting like a "b". They were able to sew around her esophagus and use her own diaphragm there. That should help cut down reflux a lot. The rest is gortex. She is amazing!