3/5/16

Going, going, gone!!!!!
We got the feeding tube out this morning and they just took off the O2!

3/3/16

That is what you would call a milk coma! One huge step foward for going home today. We are moving towards taking everything by bottle. I offered her her first bottle that had a full 3 hours worth of milk (she has only be doing and hour) and she drank over 2/3 of it. Now the rest she will do through her tube. Once she is able to do it all by mouth we are home! She is amazing!

3/2/16

Always camera ready!

3/1/16

Morning! Did great with turning down the oxygen last night!

Another big thing today. We got the PICC line out! Also the boys came in with Mike and Grandma!

2/29/16

They just cut down on her oxygen by 1/2. She was on 1 litter and now she is on .5! Fingers crossed that she tolerates it well.

We are working on feedings slowly but surely. She has a lot of reflux issues. We are trying our best to keep her food in her belly so she can grow (including her lungs).She is taking a bottle every 3 hours like the doctors asked. We are uping her calories everyday until Wednesday by fortifing my breastmilk with an additive. Then on wednesday we will take her off the continuous feeds and start to condense them along with the bottle every 3 hours. Then hopefully sometime next we it will all be done with the bottle. That is the "best case" senerio. I am guessing we will need some "rest" days but I am starting to see a light at the end of the tunnel.

 Here "PN" is down (brown bag). That essentially is her IV food. Big step! Surprised by this one! They forgot to mention it at rounds this morning! That is 3 wires down!

Update: She is still doing great. Looks like tomorrow we will be moved to a step down room (out of the ICU). We are waiting to see how her tummy does today to see if we will start feeds through a feeding tube first. The good news is she has not lost her rooting/suckling reflex. She really likes her pacifier. After I pump I put some on it and give it to her and she loves it. It us a great sign that when her belly is ready she will be ready to nurse! Most CDH babies lose that urge because the ventilator is in for much longer. Another win! Right now she loves to Cuddle and has been sleeping well. The sad part is she is going through withdrawal from the phentinal  (her pain medication). It seems to be getting much better though 😊